Changing a caregiver's story

All caregivers of children with Cerebral Palsy (CP) have a story tell. Unfortunately for most, this story begins with years of confusion, isolation and self-blame, where only the lucky ones may have the opportunity to enter a place of acceptance and understanding that will allow them to have a positive future with their child. In 2011 Malamulele Onward began to understand the significance that a caregiver’s story has on the outcome for their child and so the Carer-2-Carer Training Programme was born.

It started with training caregivers to run workshops on CP for others, to help them understand their children and have a more positive and long-term impact on them. However, this programme has grown exponentially over the past few years, where not only has the role of these trained caregivers expanded, but the activities of the entire organisation are now centred around the training of caregivers.

C2C Timeline4

Government services will never meet the needs of all children with CP at a community level, but our trained Parent Facilitators are beginning to bridge the gap between hospital services and the needs of children with CP and their families. Like therapists, Parent Facilitators will never have all the answers, but through developing their knowledge, skills and problem-solving abilities, we are able to create agents of change who can have a growing impact on the community in which they serve.

Today we have Parent Facilitators operating in at least 20 rural areas where they are equipped to: run workshops on CP; assist at CP clinics; run therapeutic groups; identify children with CP in their communities; conduct home visits; and adjust and repair equipment.

 

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Our Carer-2-Carer Training Programme does not attempt to turn caregivers into therapists, but rather we recognise that therapists and caregivers each have their own unique offering for children with CP and neither can have a long-term impact on the child in isolation. They need to work together to achieve the best results.

Caregivers bring two unique qualities to the equation. Firstly, they can develop advanced handling skills, because if they can learn what to do, they have 24 hours a day to practise and they are able to practise within a variety of settings and situations (an opportunity therapists generally don’t have). Secondly, they have a deep understanding of their own context and challenges. Thus, if caregivers are equipped with effective problem-solving abilities, they can develop unique solutions different to those developed by therapists.

 

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Malamulele Diary

Contact Us

SOUTH AFRICA:
Children's Memorial Institute
Gate 10
13 Joubert Street ext
Braamfontein
2193

Office Tel/Fax: (011) 484-9456

CANADA:
P.O. Box 308
Erin, Ontario
Canada
N0B 1T0

Banking Details

Name of acc holder: Malamulele Onward
Name of bank: ABSA
Branch: Sandton
Branch code: 632005
Acc No: 4068261682
Swift code: ABSA ZA JJ

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Malamulele Onward NPC | Company Registration No. 2006/032287/08 | Registered with the Department of Social Development as a Non-Profit Organization 056-807-NP0 | Public Benefit Organization 930025084

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